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Chicago Family Shares Personal Duchenne Stories for Rare Disease Day

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In 2005 my son, Jacob, was diagnosed with Duchenne Muscular Dystrophy (DMD) a devestating and progressive neuro-muscular disorder that affects approximatelt 1 in 3500 boys worldwide. On February 29, 2016 I spoke about our family's experience navigating the challenges and struggles of living with...


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